Autism and the Pandemic: A Mother’s Journey: Self Care

Caring for a child or an adult with special needs is a huge responsibility.  We hear the term “self-care” a lot. When it comes to being a caregiver of an individual with autism, self-care often doesn’t happen. I remember a special education evaluator at my son’s preschool telling me to take time for myself and the social workers teaching parents in a workshop about meditation and mindfulness exercises. Caregivers often ignore the vital need for Self-care in their lives I

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Autism and the Holidays

Holidays can be one of the most special times of the year for all of us and our children.  There’s something magical about reliving the wonder of this special time through our children’s eyes.  I remember as a child, so excited to have time off school to enjoy the holidays and the traditions I looked forward to every year. However, for the autism community and their loved ones and caregivers, holidays can look very different. A mom in one of

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Autism and Team Communication

I’m sure you’ve heard the saying “It takes a village.”  For some reason, every time I heard someone say that, it made me cringe.  I was do so much on my own, and I don’t have family nearby.  As a single parent with no family near, where was my village?  I changed my perspective when my son was diagnosed as developmentally delayed and then eventually with autism.  So many people became involved in his education and therapy.  Once I started

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Autism and the Pandemic: A Mother’s Journey: Goals

Allen and I love going to the park.  I should say that he loves going to the park more than me and I love it because he does.  It became our “go-to” place since the pandemic dramatically shortened the list of places we could go safely, and living in an apartment doesn’t exactly give us a lot of outside access. While there, we often see an autistic young adult with his aide at the park.  Allen loves to wave and

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Autism and the Pandemic: A Mother’s Journey: Part Three

The hot topic on everyone’s lips has been the return to school.  It invades every news outlet, social media discussion/debate and almost every household some for multiple reasons.  Covid-19 has caused immense disruption in the lives of children and their education and well-being and all could agree, special needs children have suffered far more than most.  In my previous two blogs, I discussed the impact it has had on my own son, Allen. Now that school has resumed or is

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Autism and the Pandemic: A Mother’s Journey: Part Two

The days are long and I can barely remember the days when I had a break.  It’s amazing how caregivers adapt and I wonder what toll it’s fully taken on me.  I never sleep well, because Allen doesn’t.  I definitely don’t eat as well as I used to and forget about real exercise.  As a single mom with no family nearby or able to visit, my support system is dwindling.  Everyone is suffering in their own way and self-preservation seems

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Autism and the Pandemic: A Mother’s Journey: Part One

Autism and the Pandemic:  A Mother’s Journey:  Part One As a mother with a young child on the Autism spectrum, the onset of the pandemic was devastating. Literally, my son was at his nature morning program at his early intervention preschool program one day then everything was shut down the next.  We went from having a robust schedule of school, therapy, play dates, lessons, errands and a variety of other extracurricular activities and options to keep him active and regulated

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